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The only disability in life is a bad attitude (and other nonsense)
I’ve been wanting to write a post on this topic for a long time, but didn’t know how exactly to go about it in the right way. A lot of my able bodied friends are obsessed with their weight and their...
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9 things people with chronic illness don’t have time for
One of the most aggravating part of living with a chronic illness is navigating other people’s expectations and opinions. It’s incredibly draining and can actually make chronic illness worse. I came...
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The real opioid crisis is what’s happening to people with chronic pain
I lost access to my pain medication due to the “opioid crisis” which says the people in pain are addicts. So since all people who have chronic pain are now addicts, I thought I’d share the best parts...
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Are you afraid of complaining about your chronic illness?
Are you afraid of complaining about your illness? Are there times you hold back because you are worried about what the other person will think? I don’t talk about my health problems very often, not...
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The emotional and psychological impacts of living in constant pain
I think I’m dead inside. No really I’m sitting here trying to get in touch with my feelings so that I can write a blog post, and I can’t do it because I’ve cut off all my feelings. I’m not supposed to...
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Why insignificant tasks are monumental with chronic pain
A few weeks ago I was re-reading an old post of mine about loneliness with chronic illness when I read this line: And you, your life depends on how bad the weather is that day, or how long it takes you...
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The truth about chronic pain, depression, and suicide
A conversation on my Facebook page about the side effects of living with long term chronic pain reminded me that I needed to address this topic. I’ve avoided it because I don’t like getting too...
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6 ways spoon theory is important in the struggle with chronic illness
Managing a chronic illness isn’t easy. One tool that people use to explain how we do it is called the Spoon Theory. The Spoon Theory basically says that a person with chronic illness only has so many...
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I am Fibromyalgia: What it’s like when Fibromyalgia takes over your body
I know I snuck up on you without your knowing so now that you’re stuck with me I thought I’d introduce myself. Hi, I’m fibromyalgia I’m invisible No one can see me, no one else can feel me, only you...
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You know you have a chronic illness when
Having a chronic illness isn’t easy. It comes with forgetfulness, fatigue, pain, social consequences, crazy amounts of doctor appointments, depression and anxiety, and big life changes. Not everyone...
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8 reasons why people with chronic pain feel misunderstood
Living with chronic pain isn’t easy. The side effects of always hurting are serious, but one of the hardest parts of living in pain is being misunderstood. Here’s some of the things that people in pain...
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Being immuno-compromised in a Covid-19 world is terrifying
It’s been a while since I last blogged. At some point I figured that I had run out of things to say and considered giving up blogging forever. Yet for some reason I paid my hosting fees for another...
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How to make decisions about easing up Covid-19 lockdown
At this particular moment I’m watching (and listening to the narration) of my son building a train track. Normally he would never demean himself far enough to play with a toy, but quarantine is no...
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The end of wandering in the darkness, alone (How we can work to create a...
In my dreams there is a different world. It’s a beautiful world full of a exquisite colors and patterns. It is filled with delight and wonder. In this world curiosity and deep thought are encouraged...
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How to prioritize your health when you have a chronic illness
Having a chronic illness or living with chronic pain can quickly become overwhelming and it gets even more complicated when it’s an invisible chronic illness. When your illness is invisible people...
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When you have a chronic illness, quarantine life is nothing new
Some of the world is starting to emerge from quarantine, while others are head back into it because of reopening too soon (thanks Texas). But while healthy people get to go back to their regularly...
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What people with chronic illness really want is to stop faking well
I often get questions from well meaning healthy people about what I want from them. I’m not great with words on the spot, so I thought I’d put a list of things I think people with chronic illness...
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Pain awareness and being called to be brave
Sheryl over at A Chronic Voice hosts a monthly get together for people with chronic illnesses to write about certain topics. This month we’re talking about: Feeling, Grueling, Tempting, Running, and...
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How to have a successful Covid-19 Christmas with chronic illness
Holiday season is upon us. If you’re American you’ve just finished celebrating Thanksgiving, hopefully in a safe fashion. Now the holidays of Christmas, Hanukah, Kwanza etc. are upon us and we’re all...
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Why politicians are wrong about the opioid crisis
Dear politicians in Washington, The opioid crisis was not caused by chronic pain and yet you seek to punish people in pain anyway because we’re the convenient scapegoats. I’ve written dozens of...
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